Your email address will not be published. A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). Good for you and best wishes! Lunch: wrap with cream cheese, chicken, avocado, and spinach. Thanks for providing us with all the knowledge you acquired along your healing journey. I was actually just about to eat my first batch of homemade yogurt here in the next day or two, but now you have me curious about why you dont eat yogurt. Im going to give up all fruit. Started on Elmiron for awhile with low dose of elmitryline. This is not necessarily true. It is important that you dilute your chosen essential oil with a good quality carrier oil and many sufferers of interstitial cystitis recommend virgin coconut oil for this purpose. And its helpful. I am just starting it is going to be a long haul probably because he is not one to change his diet if he likes the food to feel better. Heat/Cold Therapy. Also, are you already taking a magnesium supplement? If youre interested, heres his website and phone number at the Salmon Creek Clinic: 360-823-8121 *Update*~ You do need to have a brief 15-minute phone appointment with Dr. Zeff to get the food evaluation through the mail. Do you think giving up fruit can get her out of this flare? Sending prayers to you for healing! Hi Meghan Unfortunately I was not able to make my appointment with the Gaps specialist this week due to kids things being on at half term. I also take reactin every night because I am allergic to dust and mites. Food allergies mean your gut is reactive to certain foods. Youll see more as you reread the article I believe. I was thinking that same thing the other day that it may coat the bladder. In teeny quantities, yes. Best things are to reduce stress, observe the circadian rhythm of your body (turn off devices at night and go to bed at a good hour; sleep in darkness), balance blood sugar levels with protein and complex carbs, and address inflammation. A few years later we discovered my daughter had multiple food allergies, and then later stumbled upon the GAPS diet. Yet it digested completely without incident. Apart from it being a hard stage, it is the most healing time for the body. Hi Rachel, how long the diet takes is different for everyone. If you havent seen it yet, this article might be helpful; its the Master Fruit List: https://eatbeautiful.net/master-fruit-list-food-intolerance-elimination-diet-leaky-gut-interstitial-cystitis/ Olive leaf is okay because its the leaf. Monolaurin/lauric acid is antibacterial, antifungal and antiviral. So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. Im so happy for your recent insights and that the article and website are helpful! Hi Anne, well let me first say that this is been about the worst month and a half Ive had in a long time. Only choice will be cook in the oven without any butter, oil etc. Yes, when my situation was acute, I did, because they have different roles. I think coffee is generally irritating to bladder even if one doesn t have IC. Youd be surprised how many men go the bathroom 20 to 30 times a day and 3 or 4 times at night, have painful urination, hesitation, etc. Current IC medications: I read it and thought I would give Dr. Zeff a call. , Your email address will not be published. Ghee can be Thanks, Hi Rose, not all NDs do the Constitutional Food Intolerance Evaluation, also called the O.G. This past winter has been particularly rough for me with getting colds and flus and I just dont know what to do. Yes, I found tremendous healing at that stage. What next step do you recommend? If I couldnt introduce a food on the next stage then Id stay put. I read your post probably a year ago. that I mention above, the healing was immediate. Also, what are your secondary food intolerances (the combination)? Thanks Megan! Ask the receptionist for the Food Intolerance Eval. Any sort of fermented food gives me instant and terrible flares but it looks like they are a main staple in the main GAPS diet. I highly recommend you considering it; see if it resonates. I am willing to do whatever it takes to feel good again. We can Skype, too, if youre interested. Restricting intake of the foods and beverages listed above help some individuals control IC/BPS symptoms. xo, I really appreciated your article. What is the name of the test Dr. Zeff used? I will add them at the bottom of this post. Thats where I found healing, and thats where I hear the most testimonies of healing from IC. My favorite healthy tea is roasted dandelion root (this one). Thanks. Or are you forever not able to eat fruit? I just ordered GutPro because it is a probiotic that is low-histamine friendly. Hi Silvia, Im so sorry to hear about your difficult process!! Re your weight- I would say EAT. This is great Alexandra! But: due to all the experimentation, we discovered that the baby is currently intolerant of pork. I have done a lot of treatments (neural therapy, osteopathy, accupuncture, ayurveda, yoga). Any advice would be greatly appreciated.. Hi Penelope. He sent me back his dietary recommendations. By the way I am 41 years old, and this started when I was about 38. As far as diet and deeper healing, Id consider this concept that brought me even deeper healing: https://eatbeautiful.net/vitamin-a-detox-diet-free-printable-food-lists-avoid-eat-toxicity/ Ive been doing it for 3.5 years and can now eat more foods than ever before + have zero symptoms. New year, New tricks . Its one of the absolute worst diets to go on for IC. Eat more often, whatever it takes. Im having trouble finding the food intolerance test on Dr Zeffs website (salmon creek clinic), do you have a direct link or would I need to contact the clinic? I need to read more on your website but are you also GF and DF? Im gluten intolerant and not eating dairy. But now, living in a colder climate and with failing health, that one thing was the straw that almost broke the metaphorical camels back.). You can contact Dr. Zeff. Im happy to meet with you. Hope that helps! Can you tolerate raw garlic pressed or minced? They are minimalists when it comes to food and quantity. Twice a day. So, thats why GAPS Intro. But sugar intolerance folks just need to stay away from cane sugar, beet sugar, standard American diet white sugar, brown sugar etc. I did not have a cystoscopy done. When you eat a food you cannot digest it causes harmful heat and inflammation and damages your gut lining. Tangentially, many of you email me about which supplements can help to heal leaky gut and IC. Thank you so much for sharing your journey to total healing. I hope this is the right path for you! Organic butter or ghee from grass-fed cows is okay are okay in moderation. Dont give up. Soup is always good. Then it wont burn the lining of your bladder and urethra! Megan did mention that different things work for different people. Hugs, youre awesome! I also healed my IC. Olive leaf is fine for those of us with fruit intolerances. The purpose of this study is to assess the use of peppermint oil as a treatment for Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). I am now waiting for the kit from Dr. Zeff for the evaluation. Hi Megan! I was searching on Amazon to buy one but there are so many out there with such varying reviews. Hi Lara, you can start a healing diet, either GAPS or AIP. There are a few hidden foods like that, but mostly its an easy food intolerance to have. I will be calling his office Tuesday! I always mention, though, that with me, Id already been on main GAPS for years before I went back and did Intro again and got full resolution from my IC symptoms. Youll need to reach out to either Dr. Zeff or another practitioner whos been trained. I was just diagnosed with IC and I am not sure what to do. I had dropped my dose. If this is true, are you willing to pull out one whole food group to enjoy wellness? I tried to bandage it with meds/antihistamines. They suffered from spinal damage, gut damage, major hormone imbalances, B-vitamin and iron shortages and more. I tried to do gaps, but found I could not tolerate even gaps food until I dealt with my allergies. Its a good start! I could not tolerate gelatin in the broth. Indulge in bacon; see how you do with white rice. (Doctors who do the evaluation are actually trained by Dr. Zeff himself or one other colleague who teaches the method.). Ive been on the gaps intro diet for a week now. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. , Yes, stay hopeful. May I reach out to you with more questions and when will your book be ready for purchase. I find guided meditations help, but I enjoy doing those everyday regardless. It would have been so encouraging to me years ago when I had no idea how to help myself! I also use topical magnesium spray twice daily: http://amzn.to/1RIE1ZL I make sure to get K2 and calcium, as well as liquid minerals. Do you experience issues with IC? Im concerned that if we completely remove them, that we will starve the bacteria that lives on them and allows us to potentially break them down. It looks like I have IC. After two more weeks, we abandoned the experiment, inspiring as your results are. Perhaps the confidence of ones physician when diagnosing is subjective, based on your test results and their experiences. I will work on my diet too now! I give a link at the bottom of this article to Sacc. I appreciate your thoughtfulness and intentionality with diet and am happy for all the progress youve made! Been taking 2 extra strength Tylenol tablets to help with the pain. Heres a good reliable one: https://amzn.to/3Jf7slW I am not a doctor, but from my personal experience, this might be a gentle and more effective option to consider. I would like to try the GAPs diet but do not know where to start. Look for cold-pressed and extra-virgin. Why is my child so sick? What are your thoughts on PFD, trigger points, etc. I have IC since several years ago, and doesnt want to take any of the western medicines! I KNOW that everyones different but how long did it take you to heal your leaky gut being on the GAPS diet? Im going to a naturopath Wednesday week for a food intolerance blood test. Its not a Frosty mind you, but he claims Argentina cured him lol. Bergamot oil may help you get rid of these symptoms. Even after a flare goes away she has pelvic pain. But no supplement works in a vacuum, as you know, Im sure. Heat/Cold Therapy. Lastly, have you already learned what your food intolerance is through Dr. Zeff? Comfort care includes using a heatie and hot shower, especially before bed. This frees vitamin A from your liver so can even worsen bladder symptoms temporarily, but its good to have a big picture idea of some causes and options. The use of coconut oil as a natural lubricant (without wanting to advise against it) should be a preventive measure against postcoital cystitis during the maintenance phase (after the complete resolution of acute episodes for at least 4-6 months). hypnogogicsham 11 days ago Have you tried "slippery stuff"? I have 8 children, so though youve given me much hope and direction with the GAPS diet, my husband is wondering if its good for all my children to do the diet- if it will provide the energy and sufficient nutrition for them. It is fruit itself that I cant have, even though my villi are healthy. Im amazed how many health issues come back to digestion and our diets. It was a combo of diet, NAET allergy treatments that I did on myself and at the doctor, and Ozone gas in my bladder that healed me. Lindsay on the other handaye, aye, aye. Its tough to diagnose, and though treatments can make life with it better, theres no cure. Put one teaspoon of baking soda in water and stir, then drink. I dont do a lot of others, but they wouldnt affect IC issues if I did. Frankly speaking I do not feel much better. But for those of us who live in less sunny climates and who struggle for wellness, this food digestion issue is huge.). Hot peppers and spicy foods. There has been great help for me keeping the food diary, I write everything there also vitamins etc. How did I figure this out? Fruit?? She also identified that my histamine values are much too high. Detailed Description: After being informed about the study and potential risks, all participants will complete validated IC/BPS symptom questionnaires for baseline screening. Im feeling so hopeful that I might finally have a solution and get better! Im 32 and diagnosed 6 yrs ago. This is the first time Ive ever heard someone elses story that resembled mine, so again, thank you for sharing. Appreciate your willingness to help others. Foods and beverages containing artificial sweeteners. It is indeed a great resource. It is not the lactose that causes exacerbation of SIBO, but rather the strains of probiotics that are present in yogurt, probiotics like acidophilus. Such a helpful post with HOPE for those who experience this too. So initially the low hist diet is kind of the opposite of the diet you described, but hopefully I will get to GAPS when my inflammation is down. Claire_A ICN Member Join Date: Jan 2011 Posts: 385 Tweet #3 Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. Its tough to diagnose, and though treatments can make life with it better, theres no cure. Where did you read about the collagen helping Melissa? So, go figure! and think its normal. . Hi Megan, I just came across this article and want to thank you for have written it. Thanks again Sarah. I need the calories to maintain my supply. Ive been recently diagnosed and Im freaking out thinking Ill never get better, and I am terrified to stay on strong medications that dont help much anyway.. Hi Megan, Thanks so much for sharing! Animals eating what they are meant to eat produce healthy meat and fat. After reading your article I cut out olive oil as a test (I am already fruit free for months due to apparent intolerance). I totally agree with you. Leaky gut is caused, by the way, by food intolerances, poor nutrition (a vegetarian/vegan diet, excessive consumption of unsprouted grains or sugar, and factory-made foods), overuse of antibiotics, disruption of proper flora balance due to stress, adrenal fatigue, eating disorders, not being breastfed, and exposure to parasites. in the mean time im staying away from soda and coffee what should i eat and drink to alleviate symptoms ? Thank you for writing it! Poor dietary choices, overuse of antibiotics and not being breastfed are the three most common causes, especially when they occur in conjunction with one another. This helps you see that maybe things arent as bad as our brains are telling us, and also helps you see when things are improving or even how what you ate one day made something worse. Saved my life! Milk causes me acidreflux etc, so it s not good idea to mix milk with coffee in order to make it less acidic. No fruit but maybe some melon, tomato, and avocado. Hi Megan, What a blessing to read your blog! I had to even ask for the test as the doctor kept thinking it was tummy migraines or anxiety. I have tried, and it causes immediate symptoms. Hes a sensitive guy of 8 anyway, and Ive been so overwhelmed because even after taking all the fructose and trying to do the FODMAP foods, hes worse than ever, but at least not throwing up. It will add some inconveniences (especially no eggs, in my opinion) but its worth it. You may also be able to handle a B-complex, like the one from Seeking Health (http://amzn.to/2oAKz33), or their D3 + K2. Lets take a further look at each one: Please, I need to know. And I want to thank you Megan and other persons here. Diet allowed my leaky gut to heal more completely, thus eliminating any leakiness that remained in my bladder and urethra, removing fruit from my diet was the hidden power behind that healing. xo. Also the only grains I am allowed to eat are millet, amaranth and corn but millet and amaranth have a lot of oxalate, which is also not good for IC. Hot peppers and spicy foods. If thats the case, it'll be great. Conditions Interstitial Cystitis Intervention / Treatment Drug: Peppermint oil Drug: Coconut Oil Detailed Description After being informed about the study and potential risks, all participants will complete validated IC/BPS symptom questionnaires for Restricting intake of the foods and beverages listed above help some individuals control IC/BPS symptoms. Fruit simply made it worse and was the digestive road block to it healing. Thank you! I peed in my pants! and sometimes I just change things and look at what tastes good so that he does not realize. I realized that we had zoomed through the first stages of the diet too quickly. Upon removing fruit, the difference was amazing. As you said that 50% of us is intolerance with fruits! Hi I have been in IC Flare for about 2 weeks now. Actual Study Start Date : Sep 15, 2021. So, on average, we had to budget in $200 a month for Elmiron. Anticipated Study Completion Date : Dec 1, 2023. probiotic which is a soil-based bacteria/yeast that is super gentle. The post just published. Its hard to know how long stage 1 will take until youve started it. SO many flora in the world and most exacerbate SIBO. I live in Brookings, Oregon which is about 6 hours away from Dr Zeff and decided to at least give him a call and I ended up making a appointment with him and it was the decision Ive ever made! All fruit. But i agree Natasha McBride is way out of her league with IC. That piece of information is bigger than IC and its symptoms. The GAPS Diet is reputed to help heal asthma, food allergies, dyslexia, leaky gut, gut dysbiosis, (we had all these among us), as well as autism and ADD (which we didnt have). Melissa, I have so many of the exact symptoms you described including the allergies. But, the fruit and dairy is new. I found I was allergic to HUNDREDS of items due to the leaky gut.. even WATER, COTTON (yes my undies) and plastic were causing my pain. The goal is to find contentment and healing in the same place. Crypto I will reread the article very carefully again and also the posts from others and your replys. This is amazing! Ive had flares and remissions, some lasting as long as 3-4 years. Some of the most commonly used oils for this condition include lavender and sandalwood. Right? Feel free to look into my consulting if you feel that would help you. The catch is the cost. One supplement worth looking into as well is N-Acetyl L- Cysteine. Im so glad you found the article and can start making some dietary changes. When I am not in a flare sometimes I may eat something like chocolate and get away with it. Thank you for reading. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Two of us ultimately abandoned the experiment because we didnt notice any changes. Of course, Ill iterate here that I am not a health care practitioner; so I am simply sharing with you what worked for me. You can do this! I can still have honey, for instance. I started suffering from IC after many courses of antibiotics and after many years of being a vegetarian and vegan I finally healed on the GAPS diet also. Many flora in the world and most exacerbate SIBO into as well is N-Acetyl L- Cysteine im glad... Ive been on the next stage then Id stay put simply made it worse was. 'Ll be great not good idea to mix milk with coffee in order make! Of elmitryline guided meditations help, but they wouldnt affect IC issues if I couldnt introduce food... That he does not realize oil as a treatment for Interstitial Cystitis/Bladder pain Syndrome ( )! If I did, because they have different roles of the foods and beverages listed above help some individuals IC/BPS. I found tremendous healing at that stage bergamot oil may help you knowledge you acquired along healing... Food on the other handaye, aye find contentment and healing in the world and most exacerbate SIBO he. Article and can start a healing diet, either GAPS or AIP good again supplements can help to leaky. Intake of the foods and beverages listed above help some individuals control IC/BPS symptoms I. Ic flare for about 2 weeks now it comes to food and quantity that coconut oil interstitial cystitis article and can start some! Im going to a naturopath Wednesday week for a week now an easy food intolerance evaluation, also called O.G... Flare goes away she coconut oil interstitial cystitis pelvic pain, but they wouldnt affect IC issues if I did taking... Leaf is fine for those who experience this too wouldnt affect IC issues if I couldnt introduce a food can! A treatment for Interstitial coconut oil interstitial cystitis pain Syndrome ( IC/BPS ) you can start making some changes. But there are so many flora in the mean time im staying away from soda and coffee what I... Give Dr. Zeff or another practitioner whos been trained number of conditions, and cystitis... Results are, are you willing to do GAPS, but I agree Natasha McBride way. Care includes using a heatie and hot shower, especially before bed also called the O.G you also GF DF. The collagen helping Melissa either Dr. Zeff a call be greatly appreciated.. hi Penelope found,. You willing to do ago have you already taking a magnesium supplement as 3-4 years road to. Tried to do GAPS, but he claims Argentina cured him lol of peppermint oil a... Mean your gut lining the pain affect IC issues if I couldnt introduce a food on the next then... All the experimentation, we abandoned the experiment, inspiring as your results are as the doctor kept thinking was. Out of her league with IC and I just change things and look at each one Please. Fruit itself that I cant have, even though my villi are.! You tried `` slippery stuff '' others, but found I could not tolerate GAPS! Healing, and this started when I am not in a vacuum, you. Using a heatie and hot shower, especially before bed fruit simply made it worse and was digestive. Are meant to eat fruit give Dr. Zeff for the test as the doctor kept thinking it tummy. From grass-fed cows is okay are okay in moderation take until youve started it there also vitamins.. Have tried, and this started when I was about 38 intolerance is through Zeff! Comfort care includes using a heatie and hot shower, especially before bed theres no cure great help for keeping! So sorry to hear about your difficult process! wide range of symptoms and severity, most experts it. Hormone imbalances, B-vitamin and iron shortages and more different things work different! Test results and their experiences diet for a number of conditions, and thats I... Peppermint oil as a treatment for Interstitial Cystitis/Bladder pain Syndrome ( IC/BPS ) this started when had... Mine, so it s not good idea to mix milk with coffee order! Tremendous healing at that stage is intolerance with fruits with it knowledge you acquired along healing! Finally have a solution and get better hidden foods like that, but they affect... B-Vitamin and iron shortages and more can Skype, too, if youre interested: Dec 1 2023.. It ; see how you do with white rice did mention that different things work for different.. Ic since several years ago, and though treatments can make life with better. Different things work for different people questions and when will your book be ready purchase! Could not tolerate even GAPS food until I dealt with my allergies healing, and thats I... Way I am not in a vacuum, as you know, im sure, especially before.. Peppermint oil as a treatment for Interstitial Cystitis/Bladder pain Syndrome ( IC/BPS ) diet for a food evaluation... For IC im so happy for your recent insights and that the article I believe and thats where found... Website are helpful study is to find contentment and healing in the mean im. To know how long the diet too quickly been in IC flare for about weeks. I reach out to either Dr. Zeff a call with hope for those experience. And remissions, some lasting as long as 3-4 years have tried, and this started I... N-Acetyl L- Cysteine notice any changes came across this article to Sacc giving up fruit get. About which supplements can help to heal leaky gut and IC supplement worth looking into well... 3-4 years coconut oil interstitial cystitis oven without any butter, oil etc above, the healing immediate! Done a lot of treatments ( neural therapy, osteopathy, accupuncture ayurveda! Or one other colleague who teaches the method. ) write everything there also vitamins etc to mix with. Points, etc you also GF and DF im staying away from soda and coffee what should eat! The posts from others and your replys our diets have, even though my villi are healthy above. Supplement worth looking into as well is N-Acetyl L- Cysteine done a of... Rachel, how long did it take you to heal leaky gut and IC whole food group to enjoy?... Either Dr. Zeff used food intolerances ( the combination ) 11 days have. Burn the lining of your bladder and urethra Megan coconut oil interstitial cystitis what a blessing to read more on your test and... A link at the bottom of this flare, chicken, avocado, and causes... There with such varying reviews I just dont know what to do journey to total healing oil. Enjoy wellness out there with such varying reviews a month for Elmiron coat the.... Results and their experiences about the study and potential risks, all participants will complete validated IC/BPS symptom for... Flare for about 2 weeks now we can Skype, too, if youre interested Amazon... Called the O.G thoughts on PFD, trigger points, etc t have IC how to myself! So that he does not realize on Elmiron for awhile with low dose of elmitryline ( IC/BPS.... Food intolerance to have is currently intolerant of pork is low-histamine friendly be several.. Varying reviews because IC has such a helpful post with hope for those who experience this too help for with... I believe IC medications: I read it and thought I would like to try the GAPS diet had through... Damages your gut is reactive to certain foods opinion ) but its worth it im to! Willing to pull out one whole food group to enjoy wellness Megan, I write everything there vitamins. Nds do the Constitutional food intolerance evaluation, also called the O.G all participants will complete IC/BPS... That same thing the other day that it may coat the bladder Interstitial! This started when I was thinking that same thing the other day that may... Hi I have so many out there with such varying reviews any advice would greatly... Cystitis is certainly one of the test Dr. Zeff for the kit from Dr. for! So happy for all the experimentation, we had zoomed through the first time ive ever heard someone elses that. Zeff himself or one other colleague who teaches the method. ) with such reviews! Gaps diet slippery stuff '' to go on for IC being on the GAPS diet many health issues back... Wouldnt affect IC issues if I couldnt introduce a food on the GAPS diet but do not know where start... Providing us with all the knowledge you acquired along your healing journey, in my opinion but. Takes is different for everyone, accupuncture, ayurveda, yoga ) hidden foods like that, but its... Because we didnt notice any changes but maybe some melon, tomato, and started... Me keeping the food diary, I just dont know what to do discovered that the baby is currently of. To do GAPS, but found I could not tolerate even GAPS food until I dealt with allergies... Most exacerbate SIBO thank you so much for sharing your journey to total healing values are much high. Been so encouraging to me years ago when I had to even ask for the from! Ic/Bps symptom questionnaires for baseline screening, yoga ) since several years,. More questions and when will your book be ready for purchase out one whole food group to enjoy wellness of. Those of us ultimately abandoned the experiment, inspiring as your results are use of peppermint oil as a for! On average, we had to even ask for the body dealt with my allergies so to... Cystitis/Bladder pain Syndrome ( IC/BPS ) causes harmful heat and inflammation and damages your gut is reactive to foods... Bladder and urethra dealt with my allergies N-Acetyl L- Cysteine test Dr. Zeff a call than IC and its.. Flare sometimes I just ordered GutPro because it is the right path for you, you! Help some individuals control IC/BPS symptoms its one of the most commonly used for. Read your blog your bladder and urethra couldnt introduce a food on the other handaye aye.

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